How Deep is a Momma's Love?
If there is one thing Joey has taught me, he has taught me how deep and how fierce a momma's love will go. We will walk to the ends of the earth for our children if we had to. I know that God has created us in His image, and if He is the author of the emotions we experience, God must feel the same way about us. I know He loves us with a fierceness unlike any other, if my love for my kids run this deep and with such passion.
Joey has had a few good days. We weaned him to a peep of 9 two or three days ago, and the wean went unnoticed by him, which is wonderful. They increased his tidal from 46 to 48. Once he grows into handling a tidal volume of 50, he can handle the home vent and we work on moving toward going home. We are still learning the trach cares. Daniel and I have changed many trachs already, and I think the challenging part for me is figuring how tight his neck ties need to be. That feeling is very relative and not as concrete as I'd like it to be. Everyone has a different opinion to what the tightness should be. His drug wean is going pretty well too. He was weaned off of Ativan yesterday and methadone and phenobarb is left.
Joey had two teeth pop through on his bottom gums a few days ago, and was experiencing some really bad teething. He was sweating so much on his head, but yet his body temperature was normal. We gave him some ibuprofen and it seemed to help. He had a fever a few days ago, and his white blood cell count was a little higher. They also cultured some of secretions in his trach, and I really need to find out the name of the bacteria that was growing in it.
Some developmental milestones-Joey has started to shed a few tears, which he stopped doing a while ago. I wonder if this is due to wanting attention? He started grabbing at his toys-like he grabs the rings easily now. He can turn his aquarium on and off on his own. Our NICU nurse said that she had never had any of her babies do this in her presence. Joey is setting all kinds of records these days! Yesterday he watched his first Netflix series with me-"Lethal Weapon." He saw his first TV murder and fell asleep. Ha. We're hitting all kinds of milestones, people.
I am ready to get this boy home so we can all be together as a family. I know it's going to be challenging and scary to not have the supervision of the NICU team to guide and direct us, but I think Joey is going to flourish at home. As for Joey's care, "I can do all things through Christ who strengthens me." We will figure it out and come together to do this.
Joey’s first Fourth!
Joey’s first Netflix binge.
Here Joey thinks we are weird.
So many Fourth of July outfits to choose from!
Joey has had a few good days. We weaned him to a peep of 9 two or three days ago, and the wean went unnoticed by him, which is wonderful. They increased his tidal from 46 to 48. Once he grows into handling a tidal volume of 50, he can handle the home vent and we work on moving toward going home. We are still learning the trach cares. Daniel and I have changed many trachs already, and I think the challenging part for me is figuring how tight his neck ties need to be. That feeling is very relative and not as concrete as I'd like it to be. Everyone has a different opinion to what the tightness should be. His drug wean is going pretty well too. He was weaned off of Ativan yesterday and methadone and phenobarb is left.
Joey had two teeth pop through on his bottom gums a few days ago, and was experiencing some really bad teething. He was sweating so much on his head, but yet his body temperature was normal. We gave him some ibuprofen and it seemed to help. He had a fever a few days ago, and his white blood cell count was a little higher. They also cultured some of secretions in his trach, and I really need to find out the name of the bacteria that was growing in it.
Some developmental milestones-Joey has started to shed a few tears, which he stopped doing a while ago. I wonder if this is due to wanting attention? He started grabbing at his toys-like he grabs the rings easily now. He can turn his aquarium on and off on his own. Our NICU nurse said that she had never had any of her babies do this in her presence. Joey is setting all kinds of records these days! Yesterday he watched his first Netflix series with me-"Lethal Weapon." He saw his first TV murder and fell asleep. Ha. We're hitting all kinds of milestones, people.
I am ready to get this boy home so we can all be together as a family. I know it's going to be challenging and scary to not have the supervision of the NICU team to guide and direct us, but I think Joey is going to flourish at home. As for Joey's care, "I can do all things through Christ who strengthens me." We will figure it out and come together to do this.
Joey’s first Fourth!
Joey’s first Netflix binge.
Here Joey thinks we are weird.
So many Fourth of July outfits to choose from!
I am keeping your beautiful baby in my prayers. May God Continue to be Your Families Healer! God will make a way. I decree and Declare Healing, in the name of Jesus!
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