Joey and I are collectively losing our minds!

Oh the roller coaster of staring at the numbers on Joey's monitors all day.  One moment I think I'm handling it, and the next moment I've broken down in tears.  I used to say one day at a time, but at this point, it's one hour, or even one minute at a time.  This morning we received a phone call that Joey's left lung had collapsed and he had trouble keeping his oxygen requirements up (we try to keep his oxygen requirements at 92 and above, but it dings at 86). When we left for the evening, he was at 86 percent, but this morning they bumped him to 100 and he was in the 70s. This was not good. Scarlett removed his blanket, cranked up his AC (he likes it cold), and then repositioned him.  Once she did all those tricks, his numbers went up and she was able to wean.  He weaned down to 76 today with his FIO2, but as the day went on, he had a moment of agitation in the afternoon and he is now back at 86.  Today we established that we would do two pulmozine treatments (I learned that this is for loosening up secretions in the lungs) and we could continue on with the Hit therapy (where they use the bag to expand lungs to address adelectisis or collapse of the aveolis).  With Joey's current condition, I've learned that we have to be proactive to keep his lungs expanded. We also noticed that Joey had a lot of boogers. Once we suctioned the nose and mouth, that usually helped as well.  It has been a scary day where I have been scared to leave his bedside.

This tube down his throat has made Joey lose his mind. He is on many sedation and anxiety drugs to help him handle his situation. I told him that he needed to get better so I could stop losing my mind!


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