I get to go see Joey!
Last night we learned that Vanderbilt changed their visitation to policy back to two guardians who can switch out ever 24 hours. What a relief to be able to go see my boy. It will be kind of lonely not to have Daniel there because we like to share in Joey's adventures together, and who else can I argue with about having to change the next dirty diaper? Joey was weaned to 1.5 liters yesterday and also given his vaccinations yesterday. By 6 PM, Pam, his nurse, said that he did sound a little more diminished in his lungs and Daniel said that he had been fussy all day. The last time he got his shots, he was not a happy camper and developed a fever, so this is to be expected. We bumped him back up to 2, until we finish his series of shots. I called at 4 AM just to check on him, and Macie, his nurse, said he seemed to be doing okay and slept for the majority of the evening. I'll see how he holds out, although he has another series of shots rolling in. My thoughts about the flu shot for Joey are still up in the air, since flu season is almost over. I am also interested to hear if Dr. Ryan, the attending, hears any crackles from this morning. It should also be noted that there is some granulation tissue around his gtube site (STILL-this thing is taking forever to heal) and steroid medication will be given. I am also still doing my homework about mixed respiratory support and the different things doctors do in other hospitals that are non-traditional.
Yesterday, I had so much fear, and I still have my growing concerns. It was reported that approximately 100 people in Davidson County have now tested positive for this virus. That number has doubled over the last couple of days. This virus has inadvertently affected Joey's quality of care, just due to staffing and resources being diminished due to this virus coming. Will there be a shortage of nurses or blood soon because of this virus? All non-essential surgeries have been stopped, as they should be. But, what if Joey needed a particular surgery to go home? Does that mean he needs to still sit in the hospital until this all passes? Who knows how long this could take. The system has just been overwhelmed. What if we do go home, and Joey gets sick and needs more respiratory support or blood? Will there be a bed or a ventilator if he needs one should he get sick? There is a shortage of medication, blood, and hospital supplies. I've read that in Italy, doctors have had to choose who's life is worth more to save? Certainly a child with a chromosomal disorder such as Joey and chronic lung disease is not high on his/her list if we look at him through the world's lens. A doctor should never have to make that decision, but I hope most of us understand reality. Then I wonder if Joey is safer at home or at the hospital? I have so many questions and fears going through my mind. Then a friend reminded me to keep talking to God and keep bringing Him those fears. She is very right. Instead of just sitting in my fears and doing nothing with them, I'm going to keep talking to God about them and continue to pray for wisdom and protection. He's not just some God that is looking down on us and watching us go about our daily business. He wants to hear from us, because He is a God who cares and wants a relationship with us.
"Trust God's Word and His power more than you trust your own feelings and experiences. Remember, your rock is Christ, and it is the sea that ebbs and flows with the tides. not Him." Lettie Cowman
I was listening to a message on the way to the hospital this afternoon, and the pastor had a great point about anxiety. It makes sense to worry and have anxiety, because the reason we do worry is because we know and can see what has happened to others. In our case, we have seen other countries really struggle with corona, and health care systems collapse due to the overflow of cases. It absolutely makes sense to worry. However, the pastor reminded me of Philippians 4:6-"Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving let your requests be made known to God." Tell God your worries and keep asking him your requests with a grateful heart. Philippians 4:7 was the reminder of what I needed today-"And the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus." This spoke to me because it's completely natural to worry, but the peace of God that surpasses all understanding is the super natural part, that should overwhelm our worry. Yes, we are going to worry, but we should also go a level above that and know that there is a peace that God will give us that surpasses all of our human understanding. We need to view our lens through the supernatural lens of God and standing firm in our faith, instead of just viewing through our worry and anxiety. It does take a level of trust-that is oh so hard! I waver in this daily!
"We serve a good God, and He is in control. He is the author of peace and comfort. Prayer works, and worship is powerful." Kevin Queen
Please wash your hands for this cute guy below:
Claire starting her first day of online school with DCA
Joey says I do not need eye lash extensions!
Yesterday, I had so much fear, and I still have my growing concerns. It was reported that approximately 100 people in Davidson County have now tested positive for this virus. That number has doubled over the last couple of days. This virus has inadvertently affected Joey's quality of care, just due to staffing and resources being diminished due to this virus coming. Will there be a shortage of nurses or blood soon because of this virus? All non-essential surgeries have been stopped, as they should be. But, what if Joey needed a particular surgery to go home? Does that mean he needs to still sit in the hospital until this all passes? Who knows how long this could take. The system has just been overwhelmed. What if we do go home, and Joey gets sick and needs more respiratory support or blood? Will there be a bed or a ventilator if he needs one should he get sick? There is a shortage of medication, blood, and hospital supplies. I've read that in Italy, doctors have had to choose who's life is worth more to save? Certainly a child with a chromosomal disorder such as Joey and chronic lung disease is not high on his/her list if we look at him through the world's lens. A doctor should never have to make that decision, but I hope most of us understand reality. Then I wonder if Joey is safer at home or at the hospital? I have so many questions and fears going through my mind. Then a friend reminded me to keep talking to God and keep bringing Him those fears. She is very right. Instead of just sitting in my fears and doing nothing with them, I'm going to keep talking to God about them and continue to pray for wisdom and protection. He's not just some God that is looking down on us and watching us go about our daily business. He wants to hear from us, because He is a God who cares and wants a relationship with us.
"Trust God's Word and His power more than you trust your own feelings and experiences. Remember, your rock is Christ, and it is the sea that ebbs and flows with the tides. not Him." Lettie Cowman
I was listening to a message on the way to the hospital this afternoon, and the pastor had a great point about anxiety. It makes sense to worry and have anxiety, because the reason we do worry is because we know and can see what has happened to others. In our case, we have seen other countries really struggle with corona, and health care systems collapse due to the overflow of cases. It absolutely makes sense to worry. However, the pastor reminded me of Philippians 4:6-"Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving let your requests be made known to God." Tell God your worries and keep asking him your requests with a grateful heart. Philippians 4:7 was the reminder of what I needed today-"And the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus." This spoke to me because it's completely natural to worry, but the peace of God that surpasses all understanding is the super natural part, that should overwhelm our worry. Yes, we are going to worry, but we should also go a level above that and know that there is a peace that God will give us that surpasses all of our human understanding. We need to view our lens through the supernatural lens of God and standing firm in our faith, instead of just viewing through our worry and anxiety. It does take a level of trust-that is oh so hard! I waver in this daily!
"We serve a good God, and He is in control. He is the author of peace and comfort. Prayer works, and worship is powerful." Kevin Queen
Please wash your hands for this cute guy below:
Claire starting her first day of online school with DCA
Joey says I do not need eye lash extensions!
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