Living by faith and not by sight!
I had a friend remind me that we walk by faith and not by sight. She said those words kept coming to her. It's funny because these are the words that have been whispered to my heart every time Joey's doctors decide to wean him off of something to see how he will do. (God wink, maybe?) They may decide to remove some oxygen support, take away some drug, give less of a drug-something that will push him to work and become more independent from the support that is given him. Every time this happens, the momma bear in me becomes instinctual and questions them whether they need to slow down with all of these things they are taking away. Most of the time when something is done, little Joey, or should I call him Warrior Joey, seems to surprise me. Daniel reminded me that he surprises me more often than not, and I need to remember that. Our little boy is capable of so much and has shown us a steady pattern of his strength and what he has overcome. These kids are much stronger than we think. I say all to this to bring up the point that sometimes when we think we have it figured out, we simply do not. We can't always go by statistics (although statistics help) and what our predisposition of what the outcome will be. I have to admit that I like to cling to statistics and I can be a Negative Nancy with always expecting the worst just to protect myself from disappointment. This is not faith at all. Sometimes I just have to let go of what I think the future may hold, take a deep breath, and walk by faith and not sight. To some people, taking risks looks like skydiving or trekking cross country for some 30 day hike. For me, taking a risk is letting go and letting my little boy do his thing with God's perfect timing.
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