I Pray That You Soar!

Joey survived day 2 of nasal cannula.  He is requiring more oxygen-he is probably hovering at about 32 percent, but I suppose that is to be expected as they wean his support away.  He is almost 7 lbs. He had one bout of fussiness yesterday, but I think overall he had a pretty good day. He was happy, entertained us, and himself.  I was musing yesterday that I wanted to see Joey smile more.  I see other kids on our groups who have happy smiles, and there's a part of me that wishes he had more smiles for me. I have caught a few Joey smiles before, but I just wonder if he should be smiling more? Isn't funny that as moms if we're not worrying about something major, like my child and his breathing or heart repair surgery, then I'll find something else to worry about it-like is he smiling enough?!  If there's not one thing to worry about, then I'll find something else to worry about-don't worry. (no pun intended, ha).  What's amazing is that later in the evening, Daniel called to face time. He was so excited to share with me that Joey was moving around and smiling.  Isn't God funny? I call that another God wink. I see a couple of sneaky smiles!

A lot of these Trisomy 18 kids have challenges with liver cancer-it's really odd, but it is actually a thing. I need to request that Joey be screened using a liver ultrasound every 3 months.  Yes, that's something else to worry about, but I'm trying to commit this fear to the Lord to handle.
I'm also praying that God helps Joey to eat and breathe independently. I know it's asking a lot and is a big step, but our God is a big God, and I'm just going to go ahead and ask!  I just have a feeling that Joey is going to soar!