Painting the Town with Joey

Joey's lungs have started to clear up, and he had a pretty good last two days with the exception of an incident this afternoon. While we were at dinner, his day nurse had to actually bag him. His oxygen saturation got so low that she thought he needed more oxygen before his numbers got even lower.  We thought that his lung had collapsed again, but the x-ray actually revealed that his lungs were in pretty good shape. They came to the conclusion that he probably was irritated from being weaned from his precedex or drugs that he needed post cardiac surgery. It has been interesting to learn that babies have to be weaned from pain medications just like adults.  No wonder we have such a drug crisis going on.  Other than that incident, he has been awake and curious about the world around him. He has also outgrown the above outfit that is preemie size. The nurse pulled it out by accident, so it was quite funny to see him dressed in high water pants. Daniel said to cut the sleeves and the pants off into shorts, and Joey would be a total hipster.

On the emotional front, I wonder if I will one day be okay with this roller coaster lifestyle. Do you just grow immune to it? Even with the incident, I'm doing okay right now.  I'm glad his lungs are still doing okay, and would hope that this latest desaturation incident was not due to respiratory issues but something easy like being irritated from drug withdrawals.

Prayer requests for Joey would be that he would have less of these incidents and of course be able to breathe independently.

On a funny note, we had a family crisis when Rowan refused to get in the car with Claire behind the wheel. She has been so eager to drive since she got her permit a few days ago. Rowan said he needed her to drive for about 2 more weeks before he got in the car with her.  He was traumatized from his experience with her driving the golf cart. We finally were able to convince him to get in the car with us, and as Claire has been saying every time she gets us to a destination, "But did you die?" I don't think this was very comforting to Rowan.  Below is a picture of me holding on for dear life when my kids drive me places!