Put your seatbelt on!
With a medically fragile child, I have a lot of anxiety for things that have not happened. I tend to live in the place of the "what ifs," and get stuck in that dark place if I don't guard my thoughts. I have to remember that Jesus shows us numerous times in the Bible that he cared so much for the little children. This journey with Joey is not going to be easy, but I know that God cares for us and Joey. I pray that I can realize that God is my seat belt and that I can have the courage and strength to face whatever medical complexities show up in our future-as scary as they may be. I also need to realize that God is my seat belt while teaching Claire and Rowan how to drive in this season in my life. Jesus take the wheel!
Some Joey updates: His right lung collapsed at about 2 AM yesterday. This was tough for me because he had such a good day before. We are working on getting his lungs back in business and stronger. Weaning off of drugs is still a priority. I got to hold Joey yesterday and the musical therapist came by and serenaded us with her guitar and beautiful singing voice. I have also met the most amazing parents in the NICU that give me courage to face every day. Joey has also been given the nickname "JoJo," by his physical therapist and I find it ironic as it pairs well with my initials, "KC." (shout out to the class of '98! as ya'll know who these people are). Ha. It's almost as good as when Joey was paired with a nurse named Chandler. :)
Today I am determined to get some form of a workout in, even if I have to start doing kickboxing in Joey's hospital room. The weird looks I'm going to get from the nurses and doctors will not phase me! Last night I got to go home and spend time with Rowan and Claire and it was so nice. I have missed my teenagers. I think Claire even missed me when she said she hadn't seen me in forever!
Prayers for Joey-strength for his lungs and that he can be weaned off of his drugs from surgery
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